polio - PolioNet

“A service of Polio Outreach of Spokane”

Many good articles relating to post-polio syndrome can be found in on-line libraries. We recommend these:

If the articles in those libraries do not answer your specific questions, we suggest you do a browser search for the following articles. Also see archived issues of the P.E.N & iNk newsletter.

Table of Contents

Related Conditions

CARPAL TUNNEL SYNDROME, courtesy of National Organization for Rare Disorders.
Many PP’s have reported having this wrist disorder, whether they have done repetitive activities or not.

MYOCLONUS – MYELITIS – NEUROPATHY, courtesy of National Organization for Rare Disorders.

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Pain

THE MANAGEMENT OF PAIN, by Stanley Yarnell, MD. Though written in the late 1980’s, this paper is still valid because it starts with basic evaluation for the cause of pain and it’s treatment in polio survivors.

DEPRESSION AND CHRONIC PAIN

CHRONIC PAIN AND THE FAMILY

THE PAIN PACKET

5 pages of pain treatment strategies.

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Emotional and Relational issues

EXPERIENCES Of LIVING WITH A RARE DISORDER: What Do You Need To Know About Your Illness, by Dr. Mark Flapan Dr. Flapan points out that sufferers of post-polio syndrome are often in a state of denial, wanting to know only what is absolutely necessary about the condition. He deals with personality issues and other coming-to-grips topics. LIVING WITH A RARE DISORDER: MARITAL EFFECTS Of CHRONIC ILLNESS, by Dr. Mark Flapan This is a no-nonsense piece about keeping love alive when a chronic illness becomes the focal point of a love relationship. Dr. Flapin examines both partners’ perspectives in detail. He states, “You berate yourself for your helplessness,” but criticize the well person who assists you. This scenario can play out between any two people. Recognizing it can improve your relationship. “A chronic disease may limit what you can do with your body, but it doesn’t have to limit what you do and give with your heart, mind and soul.”

DEPRESSION AND CHRONIC PAIN

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Gastrointestinal Problems

BLADDER/INCONTINENCE PACKET
Causes, definitions, treatments. Good basic info for anyone experiencing this problem even if minimal.

GASTROINTESTINAL INVOLVEMENT IN THE POST-POLIO SYNDROME, by Sinn Anuras, MD.

LOW RESIDUE DIET, Courtesy of Deaconess Medical Center.

CROHN’S DISEASE, from National Organization for Rare Disorders.

IRRITABLE BOWEL SYNDROME, form National Organization for Rare Disorders.

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General Information

POST-POLIO SYNDROME: AN EMERGING THREAT TO POLO SURVIVORS
by James W. Aston, Jr., MD.

FRENCH SURVEY of PPS: RISK FACTORS STUDY & MEDICAL SOCIAL OUTCOME, by Diard, MD, Ravaud, MD, Held, MD.

THE LATE EFFECTS OF POLIO: from Taming a Mysterious Syndrome to Managing the Ravages of Time, by Frederick Maynard, MD
A very knowledgeable home guide for the polio survivor on all the topics we have questions about. If you’ve not requested a handout before, this is definitely the one you should start with. Don’t forget to share it with your medical professional.

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Respiratory Problems

THE WORSENING RESPIRATORY EFFECTS For POST-POLIO SURVIVORS, by John Bach, MD.
Must reading for all polio survivors to help identify respiratory problems., The article suggests solutions to discuss with your physician.

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Conditioning, Pacing and Management

WINTER IS ESPECIALLY HARD FOR POLIO SURVIVORS, by E. Hudak.
A PP’s personal perspective and a page of keep-warm tips with 800 #’s to call for catalogues of keep-warm items.

CHANGING YOUR LIFE BY CONSERVING ENERGY, by M.J. Matheson MD.
Dr. Matheson has PPS. She updated this article in 1995.

NEUROMUSCULAR EXERCISE PROGRAM, courtesy of Vivian Moise, MD.

10 MINUTE STRETCHING ROUTINE.
Pictures and text. Very adaptable to PP’s individual needs.

NEW IDEAS FOR OLD POLIOS, an interview with Fred Maynard MD and Augusta Alba MD.
The article discusses muscle strengthening, especially the correct exercise for you.

INNOVATION & ADAPTION to the Challenges of Everyday Living, presented by APPA member, Carol Penn.
A no-nonsense approach to saving our energy for the fun things in life, by using aids that are reasonably priced and readily available. .

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Medication

ELDEPRYL AND ANTIDEPRESSANT INTERACTION
New info regarding this popular drug for PP’s. A must for all PP’s taking Eldepryl.

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Alternative Therapies

VITAMINS & MINERALS, from Newsweek. Includes food sources, benefits and risks

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Equipment

WORKSHEET – courtesy of R & S Wheelchair Repair/Sales
To assist you in making the decision about which wheeled aid is best for you. This worksheet addresses your physical needs,transportation and funding. This worksheet will help with the emotional side of choosing a wheeled aid. Remember, a wheeled aid can save you energy and enable you to go to the fair, mall or grocery store.

CATALOG LIST:
The list of all 27 useful-product catalogs we have in our library. The catalog title, 800# or address and a brief contents summary are included.

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Hobbies, Activities, Travel

MORE FACILITIES AVAILABLE FOR THE PHYSICALLY IMPAIRED — newspaper article:
About public recreation areas in Washington, Oregon and Alberta.

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Available elsewhere:(Only by snail-mail or phone. Sorry!)

Self-Care Catalog, Products for Healthy Living, 1-800-345-3371

Packet of information on TALKING BOOKS, available by mail (including a cassette player if you need it) without charge. Write to: National Library Service for the Blind and Physically Handicapped, Library of Congress, Washington, DC 20542. This is a great help for us when holding a book is too much effort.

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