Post-polio syndrome – the new challenge of an old disease.
For a good explanation of polio; what it is, what causes it, etc. see “What Is Polio?”
Our “Resource Links: Polio Places, People and Forums on the Internet” page will guide you to just about everything about polio that’s available on the Web – at least, that we’ve been able to keep up with so far.
Besides the “Where Can I Find a Support Group?” page (see column on the left), for an international online support group, check out The IPPSO (International Post Polio Support Organization) Forum.
Where can you find a post-polio doctor?
See the online Library links and titles.
The PPS Bibliography is an annotated, organized list of 1200 articles related to post-polio syndrome. A great resource. Temporarily (?) not available on the Web, but you can inquire about price and order from: PPS Bibliography, 2 Coral Way, Half Moon Bay, CA USA 94019-2300.
Also … Browse down the titles of archived issues of The P.E.N. & ink newsletter.
There are other post-polio folks out there!
To locate a support group in your area, see our “Where Can I Find a Support Group?” page. If you can’t find something there, e-mail your query to G.I.N.I. International.
Would you like to join an Internet e-mail support or information group? Or maybe just correspond personally with a polio individual? Our LINKS page has everything you need!
Joni and Friends, the disability outreach of Joni Earekson Tada, “a quadriplegic as a result of a diving accident in 1967, (who) is an internationally known advocate for the disabled, radio host, author, conference speaker and mouth-artist.” You’ll find disability resource links, a chat site, family retreat opportunities, “Wheels for the world” and other very helpful information.
The INVISIBLE DISABILITIES Advocate (IDA) is “Helping people understand chronic, debilitating illness and pain.” They ask, “Do your loved ones have a difficult time understanding your illness, because to them you ‘LOOK fine? ‘IDA’s publications help friends and family see the courage and determination it takes to live with a disabling illness, amidst the challenges, frustrations and losses!”
Rest Ministries, Inc., for people who live with chronic illness or pain. “Rest Ministries, Inc. is a pioneer in acknowledging chronic illness from an emotional and spiritual perspective. … (they) genuinely understand pain and how to address it; with education, hope and of course, comfort.” -Tim Hansel, author of You Gotta Keep Dancin’
“Dan Miller, Speaker” (a polio survivor) asks, “Are you Living, Laughing & Loving Life!??” and adds, “My 11th year of full time speaking, still finds me giving: The JOY of hope, The COURAGE to risk, The FREEDOM of Humor, & The POSSIBILITY to reach dreams!” It’s a site you have to visit!
Disabled Online is “a directory that offers a variety of resources and topics, as well as offering forums and chat rooms.” Quite comprehensive.